Tracey Edry

2373573_orig[1]After a recent visit to the Burzynski Clinic for my 9 year cancer free anniversary, I decided to start this site, and share my story. My name is Tracey, and I was diagnosed with advanced stage (IIIc) ductal carcinoma breast cancer.   The tumor was very aggressive, and had spread into 18 lymph-nodes (as determined by the University of Michigan).  Because of the poor prognosis of this aggressive cancer, I decided to get a couple of opinions from hospitals in Michigan.  In the meantime, my parents received a newsletter from Dr. Julian Whitaker that featured a breast cancer survivor (diagnosis VERY similar to mine) that was treated at the Burzynski Clinic.  My parents encouraged me to make an appointment at the clinic.   I was skeptical at first, but after all I am an engineer, and like to think “outside of the box”, so I figured the least I can do is hear what the clinic had to say.  I gathered my films, pathology reports, and the endless notes that I had taken, and was headed to Houston Texas for my consultation.  I met personally with Dr. Burzynski and he carefully explained his personalized treatment and approach to cancer.  Something told me that “this just makes sense”.  I ended up staying at the clinic for 12 days, as Dr. Burzynski’s staff carefully adjusted the treatment to my specific needs. My specific treatment included a course of 6 low dose chemo treatments, six daily doses of PB (sodium phenylbuterate), amino care (amino acids supplement), and a diet that offset the high amount of sodium in the PB syrup.  I had a combination Pet/CT scan to develop a base line, and had blood work done weekly that included 2 tumor markers.  Lets talk about cost…… There is no set cost for the treatment at the Burzynski Clinic.  Every patients treatment is personalized, and everyone’s treatment is different.  For example, my mom was treated at the clinic 2 years after I was, and her treatment plan was completely different (she had a stage 1B cancer), and the cost was different. The PB and amino care portion of my treatment was not covered by insurance.  The Pet/CT scan, chemo, and blood work were all covered by insurance.  These parts of the treatment can be done at the clinic, or at a facility of your choice at home.  The doctor that looked over my case, wrote a prescription for the blood work and tests I needed, so I had my blood work done at Basha Diagnostics close to my hometown, and my Pet Scans at the University of Michigan. Progress… I was fortunate enough that I could feel my tumor, therefore I could feel the progress.  Week after week, I could feel the tumor getting smaller.  I actually started looking forward to getting my blood work reports back as I watched my tumor markers get lower and lower.  After my chemo was complete (6 courses, one every 3 weeks) and being on the PB/amino course for 4 months, I elected to have a mastectomy (right side).  I continued the treatment for about 3 years, doctors ramped down the amount of PB I was taking, until I completely finished with the treatment (I call it Graduation Day). The skeptics….. I understand being skeptical.  It is my opinion that EVERYTHING regarding your health and healthcare options should be questioned.  Doctors are human, and people need to ask the important questions.  What I do not understand is hate and harassment.  I like to tell my story, but I have been the subject to ridicule and attacks.  I have had “nay-sayers” posing a potential patients (and parents of patients) contact me, and then mince my words in horrible write ups about Dr. Burzynski.  Who does that?  Is it fun? NO. Is it going to keep me from talking about my wonderful experience at the clinic? NO. I personally feel that the way to fight evil is with love any truth.  I do not “hate” the haters, I pray for them.  Most hate and anger is based on fear.  Fear of the unknown.  Fear of “thinking outside the box”. As I develop this site, I intend to post some of my pictures of my clinic visits, share survivor stories, send out a monthly newsletter.  I am also hoping to dig up some of my old paperwork from the clinic (I hope I still have everything because seeing is believing). Why am I doing this? Because I believe that we should have say in our treatment options.  Many thanks… I am very blessed that I had a network of family and friends that trusted the decisions I made with my cancer treatment.  I am forever grateful to my parents and sister with their undying support.  I am especially grateful to my wonderful husband, for his caring support, for taking care of my precious sons (4 & 8 when I was diagnosed), and for trusting my decisions.

Carol Bricker

It’s hard to believe, but I had cancer the first time in 1992…..22 years ago. It was discovered with a mammogram and I was advised to have a lumpectomy with removal of all the lymph nodes on the right side, followed with 33 days of radiation. I followed everything including the use of Tamoxifen; a drug that caused me to gain about 50 pounds, caused asthma, sleeplessness, exhaustion, extreme coughing, and a feeling of death! Needless to say, I quit using it against the wishes of my doctor. I followed a regiment of eating well, avoiding plastics, taking antioxidants, and trying to do whatever I could to avoid cancer again. It worked for 17 years.

In 2009, I went for a mammogram and it was noted that the lymph nodes on the left side were showing signs of cancer. After three biopsies, there was cancer growing on the scar tissue in the right breast and also in the lymph nodes on the left side. The left breast had pre-cancerous tissue. I made a decision to have bilateral mastectomies and removal of all the lymph nodes on the left side. When I met with an oncologist after the surgery, he assured me of four drugs streamed into my body. One was Taxotere, a drug made from evergreens. I told him I was extremely allergic to evergreens and he said instead of 20%, he would give me 5%. I said,” No”……and my search for another way was enhanced after I read S. Somers book “Knockout”. My daughter’s doctor advised me to call the Burzynski Clinic and make an appointment; he had patients miraculously cured by Dr. Burzynski and agreed with my decision to try a different approach to cure cancer.

January 2010, I met with Dr. Burzynski and my team of doctors. My genes were tested and it was found that a tumor growing gene was overexpressed at 200. I took low dose chemo, and other meds for almost a year. My genes were retested and the tumor growing gene was within the normal range. It was recommended that I take Herceptin for the Her2gene and I did go to an oncologist for that. Again, all kinds of illnesses were creeping into my body. The last one, a virus that caused nausea and head spinning for three weeks caused me to curtail the Herceptin.

At this same time, my husband was feeling ill and it was found that he had Neuroendocrine cancer. He refused to go to Dr. Burynski and chose the traditional oncologist at a local hospital. He had chemo and cat scans for six months and died in August 2010. Thank God I was feeling well with my Burzynski treatment because I took care of him through his weight loss, sickness, and mental abilities which went downhill.

In November, 2011 I found a tiny little node under my left arm. It was biopsied immediately and removed…smaller than one centimeter. It may have been a left over cell from the lymph nodes before, but it needed to be treated as a third cancer. When I contacted the B Clinic they arranged to have the removed node sent to Caris Life Sciences and they did a complete analysis of the cancer. It was decided that I needed to take medicine for one more year. I completed my third therapy for cancer in December, 2012. I am alive and doing very well. I thank God for Dr. Burzynski and Dr. Kubove. If you are reading this to learn about gene-targeted therapy for cancer, I strongly agree that this is the way to go. My treatment was gentle with no immune system conflicts, no hair loss, no weight loss, or sickness as expected with orthodox treatments. God bless you and keep you well!

Jill Haynes (Metastatic Breast Cancer)

jill haynes“Hi my name is Jill Haynes and I am turning 53 next month. I am a patient of Dr. Burzynski and have been followed by his son Dr. Greg Burzynski. Going to The Burzynski Clinic back in July of 2010 was the very best decision I have ever made. I have been told by my oncologist that I probably would not be here. It’s hard to think of how much I would have missed out on if I hadn’t gone to the Burzynski Clinic. Their approach is different than what I would have gotten at my local hospital.

My diagnosis was Metastatic Breast Cancer that had gone to my spine and femur. I had already had a mastectomy and been on Tamoxifen. The first day Dr. S. Burzynski saw me; he took one look at me and said “You will be fine”. As if what I had was going to be easy to turn around. He gives you hope! The man is genius! After having his special blood work, he found something traditional blood work had not detected. I was elevated in VEGF. He put together a plan especially for me, not a cookie cutter program.

I took FDA approved medicines, but not in the traditional doses, much lower doses, but several different types of medicine to attack the cancer tumors from every angle. Here is what I took, a combination of PB (from the antineoplaston group), targeted therapy and low dose chemo. In the beginning I took a medicine called Nexavar but I couldn’t tolerate it, so he changed it. He often lowered the doses because I couldn’t tolerate it. The clinic called me weekly to check on me.

The doctor that followed me, Dr. Greg Burzynski, called and emailed all the time giving me encouragement and support. I felt like I was his only patient. I had terrible anxiety and couldn’t sleep. He suggested taking 10mg of melatonin and it worked! I have a wonderful life and I am forever grateful to the Burzynski Clinic and the work they do. If you are reading this because you have cancer, go to the Burzynski Clinic, you will be so glad you did!!!!!

As I still have routine PET scans and blood work from my local oncologist, he is SO impressed with my health. He thinks a miracle has happened and can’t explain why. The miracle is Dr. Burzynski and me listening to those still small voices that lead me there.”

Sheila Herron (Stage IV Triple Negative Breast Cancer)

300I am a patient of Dr. Stanislaw Burzynski and the Burzynski Clinic, receiving personalized cancer therapy for my breast cancer. My cancer is the type that mutates easily and is hard to treat and had spread to my upper spine near my spinal cord. Thanks to the loving, brilliant doctors at the clinic, who monitor me closely and adjust my medications as needed, I am alive, happy and doing very well. My latest scans show no cancer anywhere in my spine. I get regular scans and labwork, and know my meds will be adjusted if needed. I am so grateful to Dr. Burzynski and the clinic, I owe them my life and my mobility and I love them dearly! Thank you Dr. Burzynski! I love being alive.